October 7th, 2006. Beau is still having trouble bottling. He's eager and he wants it, then he chokes and coughs and sputters, then gives up and spells. It's so hard to watch your child do that and know you can't do much to help them. As the NICU doctor put it, three weeks ago he wasn't coughing at all, he's making progress. So I'm looking at it that way. He also pulled out his feeding tube for the millionth time on Friday and everyone decided to put him on a complete Ad Lib schedule. This basically means he's not a schedule. He takes what he wants when he wants to take it and he needs to hit his minimum to keep the feeding tube out. He seems happier doing things his way, of course! Plus he seems to be taking more per feed- probably because he's finally knowing what real hunger is. Or maybe it's just his age. I'm just happy he's happy.

On another note we've decided to have him transfered to a closer hospital for him to continue his bottling and stop choking training. This one is only 15 minutes from our house, instead of the 60 minutes it takes to get to his current hospital. We're pretty upset about leaving his nurses that know him. They've known him for almost 19 weeks. That's a long time. But I have to remind myself of what's best for Beau. And I know what's best for him is one person feeding him. I know he'll be happier having us around more often and less stressed out. Has anyone else transfered their babies? Did you feel the same way?