October 18th, 2006. Day 142 in the NICU. We went to tour the second option for rehab and absolutely loved it! We're definitely going to have him transfered there as soon as they have a bed. We feel really comfortable there and I feel like they're very capable and willing to work with Beau. They also have a higher success rate with babies like him.

His reflux is so bad that a g-tube won't help. None the less the hospital has placed the NJ tube even though I said I didn't want them to. He's still spelling because he still takes a bottle. He loves to bottle, but when he gets full to a certain point his reflux strikes again and he has a choking spell. Lately they've been bad so the need to get him into rehab has become urgent. I really worry about Beau's spells. Sometimes he really doesn't want to come back and that freaks me out. Then other times he coughs and clears it himself without any bells or whistles going off. The NICU NP has termed him an enigma. He'll do great for a few days then WHAM! we're back at square one.

He's also starting to show signs of oral aversion. I'm also noticing he does it more frequently with certain nurses more than others. Then, again, he'll have his days where he's great with one nurse one day then the next he's aweful with her. I'm at my wit's end. It seems like nothing is really going to help him. The g-tube won't help the reflux but will help with oral aversion as long as I have visiting nurses and early intervention here. The NJ tube works the same way. God I hope we can get into rehab soon. I'm not exactly sure what they're going to do, but I know it's a different approach and that's really what is needed now.